Lucas
Warrior of Down's syndrome
Meet Lucas
Warrior of Downs Syndrome
Nominated by mom, Haley.
Painting Request - The Little Acorn
:https://www.facebook.com/search/posts/?q=lucas&epa=SERP_TAB
A letter from Mom to Lucas,
First off thank you so much for this! It is wonderful what you are doing for family’s such as mine and I appreciate it so much!
(Bio about our family)
Our dear son Lucas,
You are our SONshine, after loosing your brother Brantley before he got a chance to come into this world we were devastated. Just a few short months later, a lot sooner than we expected, you made your existence known for the first time. With mommy’s health problems the doctors told us there was no way you would ever make it.
You were a warrior from the start.
At 15 weeks in my belly you moved out of a hole known as a hernia in mommy’s side and the doctors said “No way he can grow like that!” But yet, you did! At 20 weeks we were told “something isn’t right!” And they ran all kinds of test on mommy and you. The test came back and said you may have trisomy 21. And we said that’s okay!
You were always a warrior from the start.
When you were born you went to a place called the nicu, it’s for babies who are really sick, and we were told “He will be here for a long time.” Three weeks later you proved all those doctors wrong again!
You were a warrior from the start!
“He may never set up, walk or talk.” We have took it one day at a time but you are proving the doctors all wrong! You inspire me everyday to be more like you!
Through all the therapies you kept proving them wrong time and time again. You are now two years old and you continue to prove them wrong every chance you get. Every time mommy and daddy have a bad day you are the rainbow, the sun and the stars that brighten our life. We named you Lucas “the bringer of light” Nathaniel “gods gift” and it fits you so well! You are a warrior! You are one of a kind! You are our SONshine!
Love mommy and daddy!
Holden
Warrior of Down's Syndrome
Meet Holden.
In honor of National Down Syndrome Day
War Paint Project : Superhero Painting
He's always been her angel, her best friend and now I get to celebrate how much of a hero he is to all of us. LeeAnne
From Mom:
Our Down Syndrome story!! Our story is a little different like each and every one but it's our story which makes it special!! The words Down syndrome never bothered me, I knew that no matter what I would love my child all the same so when it came to the optional testing during my pregnancy I opted out. The doctor wasn't worried and said your so young your chances are slim and I thought it still wouldn't matter either way.
But our story really begins before that... First the summer before I became pregnant I was working at a camp as a life guard and had the pleasure of working with a young man who had both Down Syndrome and autism. I created a sweet bond with man over the week and his love and spirit has stayed with me over the years!
Second while I was pregnant I went as an extra chaperone to a special olympics event where I saw the cutest 2 or 3 year old with DS wearing khaki pants and a burgundy sweater with a teddy bear on it running along side the bigger kids on the track and I remember saying out loud 'I hope some day when people look at my little boy think oh how cute'.
Third while waiting in the OBGYN office for my appointment I started talking to another expecting mom, she shared with me that she knew her daughter was going to have Down syndrome and she knew her life was about to change so much. That was the day I was offered the prenatal testing and yet I knew at that moment it wouldn't matter so I said no if it's not necessary then I'll pass.
Fast forward a few months to my surprise emergency c-section, the day we would finally meet this little man! I had been in the hospital for observation as my blood pressure was rather high over the last few weeks and was actually preparing to return home to got to my younger brothers graduation when surprise... Holden decided it was time to come.
Unfortunately he had turned himself sideways and I was rushed to the OR and then he was here, all 7.6 pounds and 20 inches!! He was quickly sent upstairs to the nursery with my mom. I didn't even get to see him up close just a glance as they rolled him out. I was then sent to recovery where my mom and the doctors came in with the news. My mom sat down beside me and said "Sweetie he's beautiful, he's 7.6 pounds and perfect but the doctors think he may have Down syndrome ". I don't think the doctors were expecting the response I followed with 'oh well we can handle that'.
They started to tell me what this could mean for our future and I stopped them and asked 'what does this mean for right now?'
God had prepared the path for Holden to be a part of our lives and I would never change on hair on his head or chromosome in his body! I can't imagine life without this little boy! The story he is making of his life is beautiful. We have learned so much through having Holden! We have loved and been loved by so many because of Holden!!
Like many families we have our ups and downs and we have faced many challenges but Holden never gives up an inspired me to see the positive side of it all!!
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